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Soon to have C1 C2 fusion

Rachface8RRachface8 Posts: 1
edited 10/19/2015 - 4:18 AM in Back Surgery and Neck Surgery
Hey all, I'm new. I just found out I'm soon to have C1 C2 fusion. I was in a car accident 2 years ago November and have had nonstop migraines and pain every day. I'm only 25 and don't want to live another 50 or so years like this. They did DMX right after the accident and saw the slipping of my C1 on my C2 and hoped that some of the ligaments and tendons would heal and help it but that didn't happen at all. I was also diagnosed with fibromyalgia four months ago. I just met with a surgeon who specializes in my area with a new method of putting in two small screws and fusing the two together. He has a 95% success rate. He said considering the amount of range I already don't have with turning my neck I wont lose much more so it wont be much of a change. I'll be out of work the full 12 weeks because I'm a CNA at the hospital and he doesn't feel comfortable letting me go back after the first 6 weeks when I transfer into the soft collar.

I guess I'm on here looking for advice on what I should do to prep for my surgery/ post surgery. What should I do around my house to make it easier for myself? My roommate will be there 24/7 to help me and my mom is flying in for the first week or so to also help out. But I need to know what I can do to make things easier or more accommodating. I live in a two story house. Also what do I expect for after? My NS seems to think that the moment I wake up my migraines will be instantly gone but forgive me for being skeptical and wanting to call him crazy but I seem to have not so great luck and though I am going into this with a positive outlook I cant help but worry about the pain I'll feel after and not the relief. Anyone have words of wisdom for me?

I'm freaked out about being out of work for so long, not having an income. I'm freaked out about letting someone cut me open at my spine so close to my brain and just all of that. My comfortable with my doctor so it has nothing to do with him. I am freaked out that I'll be in worse pain than I currently am in but I'm not sure that's possible.

Any positive words would be helpful!


  • LizLiz Posts: 7,832
    Please take the time to read this post and refer to it when you have questions

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    Liz, Spine-health Moderator

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • Hi Rachface8
    Can you tell me your symptoms and the tests you underwent please? I do think i have cervical instability & would really like to understand the tests you undertook to have this diagnosed and what your symptoms were. I too had traumatic injury.
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