Hello I'm new here so please bare with me as I get familiar with the site . I had scoliosis surgery two years ago. I'm severly anger and depressed from my out come of my surgery. I feel betrayed and lost. Please bare with me as I try to explain . I was fussed almost completely from the top of my spine to my sacrum. I'm not sure how to say as others explain TL2 and all the other medical terms. But after having my surgery I feel like I made the worst decision of my life. I am worst off then I was before. I'm not seeking petty I'm seeking advice and someone who can relate. I'm a wife of 25 yrs who married her high school boyfriend and a mother of two adult children. 2 yrs ago I decided to have my back fixed as I felt constant pain and felt I needed or hoped I could live a better life. I found a doctor with a good reputation but he let me down as he made me feel like I was going to have a better life. Instead I'm depressed and I'm off worse than before the surgery . I couldn't get him to listen to me what I felt wasn't right. He always cut me off when I had concerns or anything I felt wasn't right ? To me he seemed to have an excuse for everything. or no concerns to problems so I gave up asking questions and just got thru my visit and decided I would just seek another opinion. Well the other opinion scared me. I was told My back was pretty much ruined and I was lucky to be alive ? I'm told its too dangerous to go back in and correct anything . I was better off leaving things alone and dealing with the chronic pain the rest of my life. I have a pedicle screw next to my aorta . Its too dangerous to go back in but the risk after two yrs gone by the risks where so low of my aorta bursting that I should leave well enough alone. I'm in constant pain I'm severly depressed and now I'm scared to do anything ? My children are grown but not married and I was looking forward to grandchildren and the net stages of my life. I'm 48 yrs old. I feel like I'm walking around with a ticking bomb in my back and my life is over . I don't know what to do next. I want another opinion but I have been scared to do anything even if someone was to tell me it can be fixed, I feel let down and I, scared to trust another doc or scared to make another decision. I have chronic pain and when I need help when the pain meds don't work I feel like I'm been looked at as a drug seekers. I'm not a drug seeker. I don't go crazy I try to show courtousey to the doctors and I show then proof of what I have went thru . Yet when I cant get my pain levels down I'm told this hospital looks down on chronic pain. I didnt ask for this ? I cant get anymore nicer than what I have been doing. I want my life back . I try to understand that doctors have to be careful . Please advice me what I need to do ? Oh I am under a pain management clinic . I have a doctor for depression. I had to quit my job cause I'm so depressed and in so much pain. why cause what my doctor did to me I have to suffer more ? ****************************************************************************************************** Welcome to Spine-Health
One of the most important things that members can do is to provide the rest of the community with as much information about themselves as possible. It is so very difficult for anyone to respond when we do not have enough information to go on. This is not meant to indicate that you are doing anything wrong or violated any rule, we are just trying to be pro-active and get the information upfront so that people can start responding and your thread is more effective.
So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong, The fact that your test results are negative does not mean that you are fine and without any concerns. Many times it takes several diagnostic tests and procedures to isolate a specific condition.
Here are some questions that you should answer:
- When did this first start?
. Year, Your age, etc
- Was it the result of an accident or trauma?
- Are there others in your family with similar medication conditions?
- What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
. Which doctor did you start with? Ie Primary Care Physician
. Who are you currently seeing?
- What Conservative treatments have you had? Which ones?
. Physical Therapy
. Ultrasound / Tens unit
. Spinal Injections
. Massage Therapy
- What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
. Summarize the results, please do not post all details, we cannot analyze them
. How many different tests have you had over the years? Similar results?
- What medications are you currently using? (details, dosage, frequency, etc)
. Name of Medication
. How long have you been using this?
- Has surgery been discussed as an option? (If so, what kind)
- Is there any nerve pain/damage associated?
- What is your doctor’s action plan for treating you?
Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.
Please take a look at our forum rules: Forum Rules
I also strongly suggest that you take a look at our FAQ (Frequently Asked Questions) which can be found at the top of the forum menu tab or by going to FAQ
There you will find much information that will
- Help you better utilize the Spine-Health system
- Provide pointers on how to make your threads / posts
- Tips on how to create your avatar (your picture), posting images, etc
- General pieces of valuable information
Please remember that no one at Spine-Health is a formally trained medical professional.
Everything that is posted here is based on personal experiences and perhaps additional research.
As such, no member is permitted to provide
- Analysis or interpretation of any diagnostic test (ie MRI, CTscan, Xray, etc)
- Medical advice of any kind
- Recommendations in terms of Medications, Treatments, Exercises, etc
What could be good for someone could spell disaster for another.
You should also consult your doctor to better understand your condition and the do’s and don’t’s.
It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have areI’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?
Diagnosing spinal problems can be very difficult. In many ways it’s like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then it’s up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.Specific comments :Personal Opinion, not medical advice :
--- Ron DiLauro, Spine-Health System Moderator : 10/25/15 12:24est