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Still in pain, does anyone care ?

aquadaddaaquadadd Posts: 2
edited 11/07/2015 - 7:57 PM in Pain Medications
It started in 1995 when I was struck by lightning for the third time. I was diagnosed later with severe post traumatic fibromyalgia aggravated by the lightning strike. I worked as a lineman climbing power poles as the cable guy. I have always got better anytime I was hurt - well this time it was not the case. I went from doctor to doctor from therapy to therapy for 3 years. I ended up in a top ranked physical therapy in-house clinic where they controlled my diet, tried to teach me to meditate, biofeedback, massage therapy, hot rocks and tried to get me to remove myself with my mind from my body and tried relaxation exercises. When I thought I had done everything I thought was possible and they come out with a cranial release session pretty much was all I could take, then I was like, you have to find a doctor that will give me the right medications, which ended up being five loracet, two milligrams xanax to sleep, zanaflex for muscle relaxers and dilaudid 2 milligram 3 times a day for breakthrough. Now, 25 years later I've lost my doctor, still 100% disabled, no one will treat me and the ones that will, are doctors with $1,400 suits, no white jackets or stethoscopes. The patients at the doctors office for pain management are standing room only and everybody looks at everybody.( Does anybody care why am I here) They know they are here to pee in a cup every month and now they're asking us for DNA swabs. They said it's a new procedure to see if my medication is useful to my body or if medication needs to be changed. As of now I've gone through hell - I get only 3 percocets, no break thru, & one third of my xanax. So I'm constantly in pain 24/7 again -does anybody care?? Just went through back surgery so now I have rods screws and two fusions in my lower back, and my medication has not changed this was another problem .I hurt my back on top of my disability and this doctor thinks the medicine I was taking for the last 25 years is a catch-all for anything else that happens to me the rest of my life. Help somebody explain this to me, does anybody care??
William Gay


  • LizLiz Posts: 7,832
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    Liz, Spine-health Moderator

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • My suggestion would be to look for another PM.

    There are good ones out there but sometimes they take alot of effort to find.

    It is becoming difficult to find a doctor that wants to keep a patient on a short acting med long term.

    It looks like you are on two short acting meds, Lorcet and Dilaudid.

    From what I have experienced in the last 18 years, a long acting med with a short acting med for breakthru pain really works the best.

    Xanax is another drug that is sometimes difficult to get, but I am thinking if you were on a long acting with a short acting for breakthru, you might not even need it.

    Anyway, I would just keep looking for a PM that is a good fit for you.

    You have documentation that you have pain so it can be done.

    So sorry you are suffering.


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