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AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:19 AM in Depression and Coping
I am not sure if I am the lone ranger on this...
For the past year and a half since surgery i have had one battle after the other.

I have been in and out of the hospital...unable to work for more than a couple hours a day...and I have missed all activities for my kids.

My husband packed up last night and took our boys camping for a 3 day weekend. I am stuck home once again. I can't go because I have started a new medication for yet another chronic infection that has set in. He was hesitant on even going, but I made him go. I am tired of my childrens constant worry on my behalf. I try to mask my true pain and act fine, but my youngest looks me dead in the eyes and says..."mom--you say you are ok but your eyes don't" WOW that is coming from a 10 year old. I feel like a failure...the constant going in and out of the Doc office is begining to ware me down!!!

I don't know why my body is so sick...even the docs call me the one in a million...i go week to week and day to day not knowing if i am actually gonna make it through.

I just want this to go away...i want to wake up and feel normal(or whatever normal may be).

Has anyone else stuggled with low immunities after surgery...I am begining to wonder if I will ever get well. Just really wearing on my last nerve!!


  • Hi Cathy,

    Sorry to see that you're having suck a k@k time there. i found that after major surgery, it took me an average of 16 months to get my immune system back to a good combat mode. It drops very low after a surgery wit hcomplications, that is the worst type of recovery periods. i hope things start getting better soon for you.

  • Hi there, I'm so sorry you are feeling so lost and tired. I know after surgery I had infection in the spine and then a mysterious fever the constantly haunts me. But I don't think it's anything compared to your situation.

    I just feel for you and understand how sad it is not to be able to do the things that you want. I don't have a family, but it must just break your heart to be so brave around your children especially. Children always know, they are so intuitive.

    Just know you are not alone in feeling this way. I'm now being treated for post traumatiac stress disorder from my injury and recovery. I told them that I feel like someone has died and my heart is broken. WE the person who died was me and my old life.

    WE all want to just get back to normal and that doesn't seem to happen in the timeframe that we want it to.

    My prayers are with you and please know you are not alone. It's such so harrible and then the depression actually causes more pain. I wouldn't be surprised that your immuine system is weak from all the stress you are experiencing. Stress can reek havic on our mind and body.

    WEll, I'l late and I will close for now, but If I can do anything plesea feel free to PM me ok?

    Hang in there, Pebbles
  • I too have had to deal with post op infection. My surgery was almost 9 months ago, and I am still dealing with infection issues on a daily basis and have been continuously on antibiotics (every day) since Thanksgiving. I've been in the hospital 5 times since my surgery for infection. For 3 months I was even on a PIC line and IV antibiotics at home. I was referred to an Infectious Disease specialist and I have found that he is much more proactive in treating me than a reg doc. He makes me get weekly labs to monitor the type and degree of infection so that we try to stay ahead of the game.

    You didn't say what type of infection you are dealing with but any kind of infection takes a real toll on your body. And each flare up depletes you a little bit more. If you haven't seen an infectious disease specialist, I would highly recommend one. They not only deal with specific infectious diseases but also in immunology and might be able to be more proactive for you.

    I don't know how long it takes to have a "normal" immune system again. I know that my doc just keeps telling me to take it a month at a time.

    My thoughts are with you. I am so sorry that you are having to go through this.
  • Thank you for your replies.

    My infection is a chronic infection in my face and neck. It has settled in my lymph nodes and glands. I actually have to got back to Doc today @12:30. May be facing another hospital stay for the thousandth time this year!!

    I feel so bad and actually pretty scared. The infection is so close to my brain!!!! I have memory problems as it is...I don't need help with causing more problems!! I am tired and just feel horrible.

    If you guys don't see me post in a while don't be surprised. I probably be out of it for a while!! I will post back as soon as I am able. Thanks for being here for me. It sucks to say it but it is nice to know people who have been through hell and back. You guys know what I am going through. Thanks for your replies!!! GOD BLESS YOU ALL!!
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