Hello everyone, sorry in advance for my bad english, cuz im from Ukraine. So, i have a very rare and strange kind of pain - it's started 5 years ago, after i got into the car accident and sost sensativity below the waist. (severe spinal injury, explosive displaced fracture and spinal cord injury, at the level of T8-T9, and fracture of the pelvic bones)
Initially the pain felt like the urge to defecate(this feeling apperaed in 2 months after surgary) and all doctors were surprised that im feeling anything after such strong trauma. But the more time has passed the more this feeling was transforming into pain. Here are some facts about this pain:
- The pain itself is in the anal area, but i know it can be a "mirror pain" (because of my trauma).
- Initially the pain was through one day (For example: one day it was like 8 in a scale from 1-10, and the next day it was like 2-3 at max, and in this form it continued for 2 years, give or take. Eventually it has deteriorated and now the difference has become completely invisible.
- The pain is pharmaco-resistent. We tried every painkiller we could get (even outside the CIS), and i just got back from the Germany, where the docrors tried to reduce the pain with morphine pump / electrodes and nothing helped.
- The main problem is that - this pain dont have the "exact determination". So the pain goes 24/7, im feeling it after 2-3 seconds when im wake up, and untill im sleeping. So it's permament in the background, but it gets worse after absolutely any movement. After 5 years the pain has reached so much, that im just stopped moving and most of the time just lying in bed.
I know that this is a lot of text, but maybe some of you may know something, because i talked to only 2 doctors outside of CIS, and as you may know our medicie is at very low level, and we dont have forums like that either
If this is a wrong forum for such problem - i would be very grateful if you could recommend me the right one.