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Lumbasacrel Plexopathy

jennygrejjennygre Posts: 2
edited 12/31/2015 - 4:46 AM in Lower Back Pain
I have been diagnosed with this and have now suffered with this for 3 months so far. My life has completely changed from once being a very active person to somone who rarely goes out for fear of my knee giving way on me. I cannot venture too far as there is no strength in my knee. I have no idea how I got this as I am not a diabetic nor have I ever had radiation treatment. I am wondering if there is anyone else on this forum who has this horrible disease. How does one cope with this and how long will this go on for. Any info would be greatly appreciated. I am currently an outpatient at a Rehab hospital this has helped a little, but not much.

Welcome to Spine-Health

It would be very helpful if you could provide us with more details. So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong,

Here are some questions that you should answer:

  • - When did this first start?
    - Was it the result of an accident or trauma?
    - What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
    - What Conservative treatments have you had? Which ones?
    - What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
    - What medications are you currently using? (details, dosage, frequency, etc)
    - Has surgery been discussed as an option? (If so, what kind)
    - Is there any nerve pain/damage associated?
    - What is your doctor’s action plan for treating you?

Providing answers to questions like this will give the member community here a better understanding
of your situation and make it easier to respond.

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You should also consult your doctor to better understand your condition and the do’s and don’t’s.

It is very important that new members (or even seasoned members) provide others with details about their condition(s). It is virtually impossible to help another member when all the details we have are
I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways its like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then its up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

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  • Hi jennygre - I have problems with my lumbosacral joint that causes my left leg to go numb and my knee collapses. My dr has never used the term "plexopathy" though.

    It also causes a great deal of pain in my lower back on the left side to the point that I cannot stand up straight. I always carry a cane with me because, like you, I never know when it is going to go out. If I stand in one place for more that five or so minutes, the numbness kicks in. Sometimes it gets bad enough that I have to use crutches because the numbness stays.

    I have had one injection in that joint that helped with the pain, though the not with the numbness.

    I suppose you could correct this with surgery but I cancelled a multi-level lumbar surgery for fear that things would get worse. It was simply way too complicated.

    So, to answer the question "how long will this go on", for me it will never get better. Only your doctor can tell you if yours will.

    Don't be embarrassed to use a cane or crutches. You can carry a cane with you and not use it. It can be difficult at first if you are self conscious about it, but you get used to it. Better to do this than to make things worse by falling.

    Let us know what you find out.

    Scoliosis and other problems at every level.

    2013: C-5 to C-6 ADR
    2014: C-5 to C-6 fusion/revision of failed ADR
    2014: Total hip replacement, right

    Cancelled multi-level fusion - fear being more crippled and in more pain.
  • I had a Nerve Conduction Test which diagnosed Lumbasacrel Plexopathy. A lot of the nerves have been damaged on the inside of m y left knee. The nerves are continually jumping around in my leg, which feel like electric shocks. I also experience a lot of burning sensations. My knee is very tight and stiff, which makes it very difficult to walk, go up and down stairs. I find Hydrotherapy fantastic. My Neurologist said I will recover, but does not know whether I will make a full recovery. I was originally diagnosed with a Bulging Disc in Hospital. I was then transferred to another hospital where I was then diagnosed with Guillan Barre Syndtome. It was when i was discharged I saw my own local doctor who referred me for MRI and Nerve Conduction Test. I am currently on Lyrica, but unfortunately nothing else can be done. I just have to take each day as it comes.
  • I'm sorry to hear about you dx GBR. That probably helps explain things. I don't know much about it.

    I'm glad you like the hydrotherapy. I wish I had a pool nearby. We have to keep moving, stretching and exercising when we can. It's good that your neurologist is positive about your prognosis.

    Hang in there.
    Scoliosis and other problems at every level.

    2013: C-5 to C-6 ADR
    2014: C-5 to C-6 fusion/revision of failed ADR
    2014: Total hip replacement, right

    Cancelled multi-level fusion - fear being more crippled and in more pain.
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