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13 Weeks Post-op

PinklesnortPPinklesnort Posts: 1
edited 01/06/2016 - 6:57 PM in Recovering from Surgery
I apologize for being a Connie Complainer, but I need anyone who has had lumbar fusion L4, L5, S1 to comment or pm me. I am experiencing some unbearable pain in my back, to the point I am crying. I don't even feel like I have had surgery to fix the problem, the pain is so bad. I am 13 weeks post op and I know it takes time to heal, but I don't think this is normal. Please help! Anyone!

Welcome to Spine-Health

It would be very helpful if you could provide us with more details. So many times we read about members who have different tests and they all come back negative. The more clues and information you provide, the better chances in finding out what is wrong,

Here are some questions that you should answer:

  • - When did this first start?
    - Was it the result of an accident or trauma?
    - What doctors have you seen? (Orthopedic, Neurosurgeon, Spine Specialist, etc)
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    - What diagnostic tests have you had? And their results (MRI, CTScan, XRay, EMG, etc)
    - What medications are you currently using? (details, dosage, frequency, etc)
    - Has surgery been discussed as an option? (If so, what kind)
    - Is there any nerve pain/damage associated?
    - What is your doctor’s action plan for treating you?

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I’ve had this for years, it hurts, I cant move my shoulder – what could this be, what treatment should I get?

Diagnosing spinal problems can be very difficult. In many ways its like a game of clue. Especially, when the diagnostic tests come back negative – no trouble found! Then its up to the patient and the doctor to start digging deeper. The doctor is like a detective. They need clues to help them move along. So, you as the patient need to provide the doctor with all sorts of clues. That is like it is here. Without having information about a condition, its impossible for anyone here to try to help.

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  • SavageSavage United StatesPosts: 5,427
    What kind of reply did you get when you notified your surgeon?
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • Hi,
    I sent you a PM. I feel similar - and am almost 10 weeks post-op.
  • hvillshhvills Suzhou, ChinaPosts: 724
    edited 01/10/2016 - 12:10 AM
    You are NOT alone...!!!! It took me 4 plus long horrible months after my second fusion surgery to finally be rid of the agonizing nerve pain, which was as bad or WORSE than before the surgery. Pain and misery all over every day ALL day. The only thing that saved my sanity and calmed my screaming/crying was I took a daily dose of time release Oxycodone which gave me some relief... but for sure it was a horrible time and like a nightmare. Like you I kept telling my doctor something was wrong and he kept taking x-rays to check my back and then kept saying.. "everything looks good... you will be ok... hang in there." Yeah...sure easy for him to say... he was not the one agonizing in pain!!! However to give you hope there is light at the end of the tunnel... and in end he was right as almost overnight around 4.5 months I woke up one day with almost zero nerve pain. It was like a miracle... I had a grin from ear to ear that day... and the next day I dropped the pain meds like a lead balloon... and haven't needed them since. Nerve healing is a SLOW process and it sometimes seems like they will never calm down... but eventually they do. So cry if it helps... I know I did... but it WILL get better. If you have doubts go see your doctor and INSIST he check you and give you some/more pain meds if needed. Keep us all posted... we are rooting for you...
    Harry - 63 year old male...
    PLIF L4-L5-S1 due to disc degeneration... May 23, 2013
    PLIF L5-S1 due to failed fusion and broken screw... Jan 19, 2015
    Microdiscectomy, decompression L3-L4 due to herniated disc... Jan 19, 2015
  • I'm 10 weeks after L5-S1 PLIF and having severe pain still. I am on oxycodone every 3-4 hours still. Is anyone else still needing pain meds this late? I see the pain management dr next week. I am also scheduling PT soon. My surgeon pretty much said everything is good, see you in 3 months. I am working as much as I can, but sitting at my desk is so uncomfortable, and I tire very quickly. I feel like such a wimp as I thought I'd be almost back to normal by now! I am not driving yet either. My pain is mostly low back, but this week I started getting leg/glute pain again which I hadn't had since before surgery. I am worried about ever getting back to normal! I am staying with my parents since I can't do much of anything like cooking/laundry/cleaning/etc. I hope this slow recovery doesn't mean I am going to have a failed fusion.
  • dilaurodilauro ConnecticutPosts: 9,846
    edited 01/12/2016 - 3:38 PM
    No one recovers at the same time frame as another person.
    Just as one person may need pain medications longer than another person.
    That does not mean you are right/wrong strong/weak. Just means you are an individual.

    When it comes to the total recovery period, please read Recovery, the most important phase
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • hvillshhvills Suzhou, ChinaPosts: 724
    Don't worry... continued nerve pain doesn't have anything to do with whether the bone fusion will be good or not. On your last check-up I'm sure your surgeon made an assessment of the progress of your fusion... and if he said you were all good don't worry about. Try to get up from your desk every 30 minutes and have a quick walk around the office... it will help the stiffness and pain. Don't worry your NOT a wimp... we're all in the same slow boat... hang in there.
    Harry - 63 year old male...
    PLIF L4-L5-S1 due to disc degeneration... May 23, 2013
    PLIF L5-S1 due to failed fusion and broken screw... Jan 19, 2015
    Microdiscectomy, decompression L3-L4 due to herniated disc... Jan 19, 2015
  • Thank you both for the reassurance and suggestions. It is great to have people who can relate to what I am going through. I only discovered this site about a 6 weeks after surgery - but maybe that is a good thing! Thank you again.
  • I feel bad for you. I had open back surgery 4 weeks ago. But no real pain before or after... I'm lucky I guess.. Took oxycodone for a week maybe.. Off drugs mostly. Have remaining numbness but I can walk!.
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