It is now January 2016. In December of 2015 I was finally diagnosed with CES. Almost 5 years after I told my doctor there was something seriously wrong. I could pass urine or have a bowel movement without hours of screaming straining agony for hours. Mostly between 16-20 hrs a day.
I am scheduled for surgery next week for my "permanent" colostomy bag and catheters to boot.
I have been suffering miserably for almost 5 years because 1 specialist said I was making it up, when he actually misread the results (according to other doctors, who also did nothing) now I am permanently damaged. I am on toilet straining as if I am having kidney stones DAILY for 12-20 hrs a day screaming and hoping I would die, on many occasions. I am excited for the relief but feel homicidal towards all the doctors that failed me.
never ever give up!