Hi I'm Ang, 46 from Manchester. UK.
I have Ehlers Danlos Syndrome and have extremely loose joints and spine.
I have Arthritis in my spine and nerve ipingement at C5-6 and C6-7. Even though there is also a significant narrowing and I have neck and head pain I have been coping successfully for a number of years.
However, I was hit with extreme pain which felt like I'd severely damaged muscles in my upper abdomen. The pain went into my chest and also felt like an axe was in the middle of my spine. 5 months later after going through several tests with a gastroenterologist, all of which were clear, I had an assessment with the musculoskeletal team who ordered a thoracic and cervical spine MRI. The problems with my neck showed up but also a minor disc bulge and nerve ipingement at T7-8. This matches up with the right dermatome and therefore this feeling of having a burning ribcage with sensations of having hot barbed wire constricting my torso seems to make sense.
Literally for the past 5 months I've spent most of my yime lying flat in bed because that position calms the pain down. When it first hit me I went to the emergency room twice the pain was so bad and they just sent me home with stomach medication. I'm virtually housebound. However, I've been refered to the neurosurgery/spinal clinic and have an appointment with them on the 1st February.
I hope to not only get support but also to offer support to anyone. I've suffered chronic pain all my life due to Ehlers Danlos but this thoracic pain in a whole different ball game.
Nice to meet you all anyway,