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Ok. So I went to see a new neurosurgeon. He told me I had a freak spine ( those were his exact words ) and that everyone I've seen up until now has just been using me and not actually fixing anything and that I need to see the best of the best. My tailbone is bent at a 90 degree angle. My l5 s1 fusion isn't actually fused and my l4 is unstable. I am now waiting for aprival of a ct scan with dye and x rays while being bent on different positions. He suspects I may have arachnoiditis from a dura tear that, from what I was told, was caused by a bone spur. He said that the surgeon just told me that so I wouldn't sue him for nicking the dura sack during the fusion. So it's rather arachnoiditis or an unstable l4 that needs to be stabalized or even possibly both. Still waiting for the scans.

What I'm wondering is if this is a common practice? To lie to patients in hopes they won't get taken to court over a surgical mistake?
Also, what's up with this arachnoiditis? He told me it is was caused by the spinal fluid leaking onto the nerves and fusing them to to togeather making it hurt all the time. There is no fix for it and should have my SCS removed and have a morphine pump installed.
So that makes me wonder, how the pump is? Any experiences?



  • itsautonomicitsautonomic LouisianaPosts: 1,807
    Man I hope its not arachnoiditis for your sake. I dont think its common practice , but again people will do or say anything to avoid litigation. If the current neurosurgeon is best of the best compared to the other doctor I would be inclined to believe what he is telling you.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
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