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Anonymous
Burning pain after Radio Frequency Ablation to Neck (RFA)

I had extreme neck pain (herniated and degenerative discs) that also lead to severe headaches. After steriod injections were not successful I had the RFA procedure (nearly 2 weeks ago). My headaches are gone (which is wonderful) but there is still some neck and shoulder pain.

The pain/side affects include numbness, skin sensitivity and an uncomfortable burning sensation in my neck and shoulders. The skin sensitivity runs through out my neck, shoulders and even under my arms. Wearing a necklace against my skin is unbearable. Even the collars and the seams of shirts irritates my skin. It reminds me of the feeling that I had with shingles, minus the rash.

Has anyone else experienced this with an RFA procedure? If so, did it last or eventually go away? Is there anything that can be done to help with these post treatment issues?

Schmertz (not verified)
RFA pain

Sorry about your pain. It has been 3 weeks since my RFA in the spine.Every day seems to get a little worse.Am seeing my Dr. tomorrow and hope he has some amswers. Good Luck !

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Radio Frequency Ablation

I am new to the forum but very thankful to be able to read about others experiences with RFA. I had the procedure done 10 days ago on the nerves in C5 and C6, both sides, and am having terrible side effects. Besides the burning and soreness in my neck, when I try to walk I feel numbness all over my head, in my back and legs, and terrible neck pain afterwards. I am trying to decide if I just need to rest longer before trying to go out and walk or if something is wrong. Has anyone experienced these symptoms?

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Pain...

Hi,

Well, you asked for honesty...here goes. I curse the day I received my CRV. I had mine done because of neck pain and migraines every other day and was willing to cut off my head at that point...hindsight is 20/20. My left side was fine, two weeks recovery and I was good to go, no issues. My right side however had me on a 4 month cycle of switching medcinces from Lyrica, Gapabentin, Norco, Hydrocodine, another nerve medicine and finally morphine because nothing took the pain away. I went back in for shots of steriods that were suppose to "calm things down" but just made things worse. It was finally a mixture of high does of Gapapentine and morphine where I felt like I could function. Finally, 4 months later I was able to get off both drugs but my neck is still not fully healed and has just started to get bad again. The best way to discribe it is like I'm getting electricuted with sharp intense pains in on my left side of of my neck. Had I just waited until I met my current nuero and went on Topomax my migraines would have went away. I know believe I have permanent nerve damage and am 100 times worse then what I was before. BUT...what you have to consider is my right side was fine and in two weeks it was ok! I only tell you what I went though so you know what meds I took becuase I finally found a combo that worked. Luckly, I'm not on anymore now, but there are times when I wished I was on the gapabentin still because this nerve pain is unbearable but I feel I was on it for , so long that I need to just push through this one. What does help me though is bacolfen, it's a muscle relaxer it really loosens your next up a bit. Good luck!

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Pain...

Hi,

Well, you asked for honesty...here goes. I curse the day I received my CRV. I had mine done because of neck pain and migraines every other day and was willing to cut off my head at that point...hindsight is 20/20. My left side was fine, two weeks recovery and I was good to go, no issues. My right side however had me on a 4 month cycle of switching medcinces from Lyrica, Gapabentin, Norco, Hydrocodine, another nerve medicine and finally morphine because nothing took the pain away. I went back in for shots of steriods that were suppose to "calm things down" but just made things worse. It was finally a mixture of high does of Gapapentine and morphine where I felt like I could function. Finally, 4 months later I was able to get off both drugs but my neck is still not fully healed and has just started to get bad again. The best way to discribe it is like I'm getting electricuted with sharp intense pains in on my left side of of my neck. Had I just waited until I met my current nuero and went on Topomax my migraines would have went away. I know believe I have permanent nerve damage and am 100 times worse then what I was before. BUT...what you have to consider is my right side was fine and in two weeks it was ok! I only tell you what I went though so you know what meds I took becuase I finally found a combo that worked. Luckly, I'm not on anymore now, but there are times when I wished I was on the gapabentin still because this nerve pain is unbearable but I feel I was on it for , so long that I need to just push through this one. What does help me though is bacolfen, it's a muscle relaxer it really loosens your next up a bit. Good luck!

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Kristin

Wow, I am so sorry that your in so much pain..Thats heartbreaking. I can't imagine going from bad to this much worse on something that was sapposed to give you relief....Why do these doctors not tell us about these possible side effects....I was told that the procedure was painful and right after big pain relief....Lie lie lie lol...I have a week and one day till the right side and am putting serious thought into this..If the flip side could be what your having to endure than in my opionion it is not worth it...you said this is a permanent injury now, to your nerve..I'm speachless and can't even come up with words of comfort for you..except I'm so sorry....Thank you for telling me, this changes things completely for me..Please take care...Annie

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annbonari

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Pain...

Hi,

Well, you asked for honesty...here goes. I curse the day I received my CRV. I had mine done because of neck pain and migraines every other day and was willing to cut off my head at that point...hindsight is 20/20. My left side was fine, two weeks recovery and I was good to go, no issues. My right side however had me on a 4 month cycle of switching medcinces from Lyrica, Gapabentin, Norco, Hydrocodine, another nerve medicine and finally morphine because nothing took the pain away. I went back in for shots of steriods that were suppose to "calm things down" but just made things worse. It was finally a mixture of high does of Gapapentine and morphine where I felt like I could function. Finally, 4 months later I was able to get off both drugs but my neck is still not fully healed and has just started to get bad again. The best way to discribe it is like I'm getting electricuted with sharp intense pains in on my left side of of my neck. Had I just waited until I met my current nuero and went on Topomax my migraines would have went away. I know believe I have permanent nerve damage and am 100 times worse then what I was before. BUT...what you have to consider is my right side was fine and in two weeks it was ok! I only tell you what I went though so you know what meds I took becuase I finally found a combo that worked. Luckly, I'm not on anymore now, but there are times when I wished I was on the gapabentin still because this nerve pain is unbearable but I feel I was on it for , so long that I need to just push through this one. What does help me though is bacolfen, it's a muscle relaxer it really loosens your next up a bit. Good luck!

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Radio frequency post procedure pain

I had Rf on my c3 c4 c5 and c6 6 days ago and am feeling worse everyday, I had my neck done 19 months ago and it was about 3 months or more before I started feeling better. I have odd nerve like burning which is getting worse the last 2 days, I was just looking for someone that can relate to this odd pain At Wits End

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binkydidit

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Rhizotomy/denervation/RFA

Hi,

I had mine done in 4 places in my neck 3/08. I felt like I had a zillion sunburns under my skin in areas. Each week the sunburn sensation lessened. It took 6- 8 weeks for it to go away, but the procedure took 75-80% of my pain area away. It took away all of my neck & trap pain to my shoulder. The only place it didn't work was in my shoulder blade. That pain remained at a 9.5ish. I was very happy with that result, but it only lasted 2-3 months. I went to pain mgt. dr to have it repeated, & I was shocked that they refused. My pain mgt. dr doesn't consider the procedure a success unless it lasts at least six months. I wish they would try it again, but the dr said that the risks outweighed the benefits in terms of time for me. I am now on a pain meds. mgt program.

Hang in there. I hope that your burning sensation lessens, and I hope that you get great & lasting pain relief!!

You can PM me if you have any questions.

glo
Smile

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Pain after RFA

This is all very interesting to me, as RFA is a treatment that my pain Dr. recommends instead of steroid injections.
Reading these posts, and others elsewhere, makes me very wary of this procedure.
Why does it hurt so much for so long afterwards?
Were you warned that this might happen?

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hi

Peter B wrote:
This is all very interesting to me, as RFA is a treatment that my pain Dr. recommends instead of steroid injections.
Reading these posts, and others elsewhere, makes me very wary of this procedure.
Why does it hurt so much for so long afterwards?
Were you warned that this might happen?

the reason it hurts is because the nerve ending has been burned off,and it takes a while for the nerve to die,i had mine done in 2008,it did work for my nerve pain L-5 S-1,my pain doctor did tell me it would hurt afterwards, and he gave me extra pain meds...

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Peter B

I had no warning of the after pain..They said the procedure was painful but that was it....I had c4,5,6 and 7 done on left side....next on right side and last on low back...but i have fibromyalgia too and this is my first day out of bed 5 days later.....I'm scared about the rest and seeing what others are writing about...GL everyone,,,It sucks being a guinee pig doesn't it..

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annbonari

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!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I haven;t been on the site for a while. Glad I found the post. I'm scheduled for RFA on May 14. I am so tired of back problems. My Doc says it has to be repeated every 3 months and you hurt worse for the month after the procedure. So,,I'm doing this to possibly have 2 good months?

Tom

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RFA

Hey Tom,

I hope your procedure goes well. I am a second timer, My first RF procedure was July of 2007 and the results lasted for about a year. The recovery was somewhat painful, tightness at the injection site and severe burning, The Dr.s call it a "BURNING SENSATION". I strongly disagree but that was the worst part. I am currently at 5 weeks after my 2nd RF and I am in Physical therapy and doing OK. So good luck and I will be interested to hear how you are doing!
Take Care
Kristi

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binkydidit

colkayem (not verified)
reaction to RFG treatments

I'm supposed to get this Radio Frequence Denervation procedure done and reading the above notes makes me quite fearful to have it. Just about everyone above has had significant discomfort and for some not much pain relief at all. It makes me wonder, "should I go ahead?" Please let me know what you think. Thanks

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we are all different

When the procedure was done on my cervical neck (3) different times, there was always the after effects of having someone messing in that area. It only makes sense - though it is not invasive, the muscles, nerves and so on are a little pissed off. At least that is what the doctors told me.

I had 2 different doc perform the same procedure and what a difference in pain after wards. The first doc had me lay on my side and it took nearly an hour - my whole body hurt from holding that position for so long and the procedure itself gave me pain. The second doc had me lay on my stomach and it took less time - Thus the pain afterwards was much less.

Lastly, though it didn't solve my problems, it did give me some relief of pain and gave me much more ROM of my neck. I still continued to have shoulder and sternum/thoracic pain. Now 1 year later, i'd give anything for the slight improvement....but the docs have moved on with other attempts to help me and now it is time for the nuerosurgeron.

Make you own dicision, but you will never know if it will help YOU or not until you try.

I even tried the Botox for my neck - now that is one procedure I would never repeat.

good luck - pm anytime
pfm

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"Just when I got use to yesterday, along came today"
YaYa Sisters

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Radio Frequency Ablation August 29, 2010

Raised Eyebrow
Well, it hasn't been long since my procedure myself, and I have the same thing pretty much you all have causing pain, herniated disks, stenosis,tendonitis, fibromyalgia, even apparently some spinal fluid leaking from one of the herniated cervical disks. The alternative is a lot scarier procedure to help pain, from what I've been told. I hear they go in from the front, where you know...the carotid artery area is!!! No thank you! But it could be bogus. Anyway, I had two sort of successful steroid injections on left side c-1 - c-6 I think, and one procedure on the right side. My migraines, arm pain, back, neck blah blah has been unbearable, so injections were inevitable since I'm on everything imaginable. So now, brings me to the recent RFA. Yes, burning, yes tenderness, aching in upper areas where shots were, and I was awake, cried like a baby and kicked the rails several times, but guess what? I used to be an ER "Frequent Flier" (joking, like airport talk hehe) but since, I rather take this less burning, temporary pain, or if not temp, is better than 12 out of 10 pain level before. You know the pictures they show to describe your pain? Well, they didn't have the one where the person is banging there head against the wall to knock themself out (for pity's sake)because that's how I felt before! I know its short time now since, but hey, no ER yet! A record for me! I say if you relate to me, almost renaming yourself to "Migraine" "Sciatica" or "Pain Always Smith, instead of your own name, then try it! But see, I've had pain my whole life and it is the lesser of evils of operations for me too. I have to do a round of steroids on the right then the RFA too, oh well. But better than before, let me tell you. Good Luck to you all!

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One More Thing

Day Dreaming I sure hope I didn't scare you off. But anyway, it has been a relief, and I forgot to say, at least according to my doctor that if the steroid injections are not successful, the RFA is unlikely to help much, but maybe they were reaching to help in any way possible. You see, I've been on every prevention for migraines, and on different meds that I rather not be, and still in great pain. The steroid injections did help, so the right side is getting that first, and I'm glad. (I have allergies to cig. smoke so that made my treatment not last very long last time. Just to let you know, a surgeon told another patient in preop that if you smoke, your recovery, healing time is slower, just to let you know. After this RFA treatment I was given a topical cream called PENNSAID (diclofenac sodium 16.05 mg. and it does help for the burning pain. So ask for it. It's expensive and I was given samples. They give them out because of that, and I doubt I'll use it all. its watery, a tiny bit soaks in. I wasn't using it, then did, and it made a difference. I was trying to not be so needing stuff, but it did help swelling and burning. (Is still) Remember I just had it done, and no ER....that's a Hell of a lot better then going under the knife. (I had a 9 out of 10 migraine lack of sleep going in also, so wa a baby. I know i could've handled it better if not already swollen. So don't freak about me kicking the rails. I got "over twilighted" because I was already sick, and I got lots of relief after. And, yes,I will do it on the right side soon even with this.

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RAF

I had a Radiofrequency ablation....i.e. Nerve destruction on 12 16 2011, about 6 weeks ago. I am still suffering the most excruciating pain throughout my entire left leg and hip. I had the disc at L5-S1 replaced in March of 2011. As the Dr Frankenstein was performing the procedure he did not sedate me and continued to tell me to "stay still"...cmon. I am still at about a level 7-8 daily with a pile of pain and nerve pills a day. As far as your migraines go , has a doctor ever mentioned amitryptoline to you? I too suffered with migraine for 35 years or so and have been on amitryp. for about 1 1/2 years (one at bedtime) and have only had a handful of migraines in that time. Considerably better than the 3-4 per week. I hope this ablation pain goes away...I begged my neurosurgeon not to make me have it but it was insurance "protocol"...I feel as though this so called pain specialist has burned my surgical scar or my sciatic nerve... Feel free to PM me....thanks for listening..

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Ows1213

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Scarry

I just had c4,5,6,and 7 done on left side..Next I have the right side and after that exact same low back as you...First day out of bed 5 days later...It kicked in my fibromyalgia pain and can hardly move....We're the guinney pigs of our pain specialists ..And i believe it its because they are tired of prescribing pain medication for even us..because of the pain med junkies out there that just do it for fun...good luck

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annbonari

marge1920 (not verified)
radio frequency on neck

d the right side of my neck on the 15th I was told the radio frequency that the pain would get a little worse than I have had but it seems to feel a little better. The only problem I have is that the back of my neck is numb. I am having the other side done on Wednesday I hope this one is better. I am hoping everything goes well since they have suggested that my back I want to get off all pain medication. Any suggestions

bradcapo2 (not verified)
Cheers and we look forward

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joint injection

I had it for my back it takes about 2 weeks to kick in i still feel burning, but every day it get minimal, i love my pm doc and i trust him, this procedure is to last from 3-5 year"s but it does take time to work !!good luck to all

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CLAUDIA

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I had RFA Last Tuesday August 24.....

After an ACDR C5-C7 in June 2009, half a dozen epidural facet and trigger point injections both before and after the surgery I had to try it. I have the sensations you described above but not too bad. Actually about the same as my pain the last 4 years, just different. My pain DR said I can do anything I want physically as long as I can tolerate it. My Neuro surgeon said that if this works for a period of time he might consider another (higher) fusion for a permanent fix. And around and around and around we go !

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Radiofrequency ablation is a

Radiofrequency ablation is a procedure that creates a nerve injury produces local heat. When a disability is placed over a nerve pain, pain signals are suspended and the perception of pain by the brain decreased.

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radio frequency

had a radio frequency did on c spine. having alot of burning in the back of head area. anyone have the same problem. feels like head is on fire.

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I had this mentioned to me as a potential next step

So, I want to say this with a ton of emphasis -- that these posts are so incredibly valuable. They may sound scary or even negative, but I take them as being 100% HONEST. For people like me who are told by their doctor (with a reassuring smile on his face) that this might help, I have now have the benefit of the experience of others to help me better contemplate whether the potential benefits are worth the potential side effects.

I am so happy that I came across this thread!

Thanks!
Dave

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9/2008 - L5/S1 Discectomy - Removed a section of disk the size of a man's thumb. Worked beautifully!
5/2009 - L5/S1 Repeat Discectomy - Had reherniated it riding my bike. Pain never resolved
1/2010 - TLIF at L5/S1 - fusion is stable, but pain is still unresolved ever since second discectomy
9/22/10 - Finally found a Physiatrist who has taken over my complete care. Looking forward to this next chapter of improved pain management.

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MY RFA pain update for your info.

Update on my RFA. 4 days after the procedure the pain went WAY up. The highest it has ever been in the 4 years I have treated for this pain. As recent as 1 week ago it was intolerable. The DR's PA said it would go down in 2 weeks after the procedure. Unfortunately my visit with her was 3 weeks post operative !

However yesterday (4 weeks and two days since my RFA) the increased pain is just now starting to drop . I'll keep you posted.

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Slowly But Surely in some respects...

I do feel that was the only thing that could help me remotely, and have the right side to do. I keep getting migraines on that side now, which move to the left, and believe it or not, there is still a large area in my head, where there is horrible pain with acute migraines, as well as neck. One area in particular in my neck on the side is awful still, but...my left arm isn't hurting, shooting pain down and I can be on the computer, make my music, unlike before. The burning after opsite area pain, is minimal now, over 2 months I think, and it is a little tender while brushing my hair. But see...I do see some areas of great relief! Yet I'm still in great pain, so they need to do the other side, maybe a second. A process, and time. I joke that my nerves are growing back, or rejuvenating, repairing, I had taken the supposed Neurontin for nerve pain renoun for regenerating nerve growth, repair! pfff!!! Instead it made me get tremmors on maninly one hand and I couldn't type, plus other stuff. Steroid injections weren't enough, but helped for a little while, and I think I have to do that before I can get the right side done, according to sources at my doctors. Oh, but my doctor had to move practice, so I'm stuck. I don't know why< what, and everything at the office is chaotic in his absence, but he was the only one near who could do it, and had offered. I know healing is bad, but believe me, without the surgery, when I look back, the pain was much more wide spread, relentless, and never was I below a 6 out of ten, now I have some 2s or 3 days. So I myself, am trying to get it, knowing I'll cry like a little child in surgery awake, "twighlighted" pfft!!! It's the only option for me in 47 years of living experience, much of it in pain having fallen as a child. Okay, so my two sense, plus there is a topical cream which I haven't needed for a while with Diclofenac, which helps. It does. It's topical and runny, but soaks in. Ask for a sample because it's expensive. I said that before, but can't help but say it again, since many people have said the burning pain. Mine is very little now, none that I can tell unless I brush my hair, and it's minimal. I'd be patient, remember the past horridness, and I bet you'll aggree, and weigh the benefits vrs risks. I'd rather a month or two of sunburn-iness than always ER chances, and wide range pain. okay, take care...I'll get back to you, and yes, I still get sick, so I know (for myself) both sides need it to work, and am trying. Wink

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Sorry I didn't spell correctly...

"My two sense!" I mean two cents, but I re-read the letter, and I think I describe my pain worse on that side than it really is. I'd say a quarter's size area of where a shooting pain is coming in, yes is hard, kind of difuses, so spreads out some, but before I'd have all my facial nerves, the trigeminal nerves, the cervical nerves, muscles, all of them top to deep inside, and in shoulder, arm, and it would stay swollen for days! There are so many layers of nerves and muscles, and my relief is worth the operation discomfort for a while. It makes you somewhat relieved if not a lot. I have kind of a lot of damage, so I'm "complicated" as they said. I wouldn't be able to sit here now this long and write all this stuff. It's a little sore now, but used to be awful, 5 mins, and I had to get off the computer! I couldn't try anything involving those nerves, and always had compresses on me, now not so much. There, now, my 2 cents. I hope it helps someone here. Not really any sunburn, unless aggrivated, and only a tiny bit after a couple months ago, maybe 3. I might need a second op on that same side, and I will if I can, because I know it'll help. Take care.

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my doc needs a decision in 2 days!

my doc gave me 12 days to decide if i want to try RFA on my c5 through c7 right side only. he had given me medial branch blocks twice at about a month apart. the first time was with 1% lidocaine and it was effective in the c5-c7 area for 24 hours but made c1-c4 and the rest of my spine issues intensify. the second time was with 2% lidocaine and it was not effective in the c5-c7 area at all. i had to take pain medication about 1-2 hours after the procedure!

so my husband and i are trying to decide if i should even give this a try, and after reading all the possible side effects vs possible benefits from the information given to me by my doctor and this forum i just ran across today, i am not sure what to do! cost is another dealbreaker. if anyone has no problem stating their out of pocket cost or how much their insurance covered it please let me know asap. i would very much appreciate it! Smile

thank you.

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RFA

I had the first of the test with 1% lidocaine to see if the RFA is for me on Wednesday. There was no change in my pain directly after the procedure and so now they are going to do the steroid shot in my neck.
So hopefully that will give me more relief.

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ACDF on 3 levels (C3-4, 4-5, 5-6) July 12th

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RFA

Dear Sufferers:

I am since 11/11/08 (car accident) in severe cervical-head-and shoulder pains. Had 4 RFA procedues and can only say that it "depends of the skills of the doctor" if the procedure is successful. I had 3 wonderful ones, then the doctor moved away. Now I have a new Neurologist, I am tampted to say, "Go back to the medical school" I had 2 injections and 1 RFA with the new one and absolutely nothing, maybe more pain. He scheduled me for a steroid injection, but I canceled, went to another, and asked for a Botox injection. My neighbor has semilar pains, also from a car accident, and swears about Botox injections. Thus, I will try my first one soon. Again, as you all can read, the success rate differs with all of us, that means that the outcome of your procedure is in the hands of the provider.

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Peggy Yell

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Im 31 and suffer from

Im 31 and suffer from chronic pain that resulted from a martial arts injury three years ago.Ive had RFA 5 separate times. It has been the same pretty much every time: 6 weeks burning and agitated and spasming muscles in my neck. After that however, I am %80 pain free for approximately a year at a time. I have to have it from C-7 to my third occipital on the left and right side. My doctor wont do each side at the same time so the whole thing from start to finish lasts 12 weeks. Despite the increased pain for 3 months, it is worth the treatment.

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.....Another concern is that

.....Another concern is that by damaging nerves, pain will be caused rather than relieved. There is a small chance (less than 5%) that the pain will worsen after the procedure. This is believed to be from increased irritation of a nerve that was only partially damaged, not completely destroyed. This can be treated with medication and usually goes away in several months. It is less common in the mid and low back than in the neck, and is most common at higher levels of the neck.
http://www.spine-health.com/treatment/injections/radiofrequency-neurotom...

(Mine was C-spine)

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Botox

To all neck sufferers:

I am now 2 1/2 year in treatment after my car accident and endured every method possible to get pain free (head, neck, shoulder), and nothing helped really. My neighbor in semilar situation advised me to try Botox for pain. My insurance covers it, thus, I gave it a try. Wow, it worked immediately and I felt as if I never had an accident. However.....

it did NOT last long. Only 7 days. My neighbor told me that with time, it last longer and longer and hers last about 4 months. The injections is 100% pain free, it is a miracle. Although I am now back with pain, the Botox doc said that he can perform it only all 3-4 months. Maybe the time from one Botox to another will last longer in future. It is worth a try.

Regards,
Peggy43

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Peggy Yell

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Cervical RFA

I had 8 RFA's done over three weeks ago and the pain and burning is getting progressively worse. Just to comb my hair is excruciating. It is now spreading to my face and I am about to go crazy from the pain. Is there anybody here who could shed some light as to how long this may last? I am ready to go out of my mind from the pain. Thank you.

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Robin wrote:Another concern

Robin wrote:
Another concern is that by damaging nerves, pain will be caused rather than relieved. There is a small chance (less than 5%) that the pain will worsen after the procedure. This is believed to be from increased irritation of a nerve that was only partially damaged, not completely destroyed. This can be treated with medication and usually goes away in several months. It is less common in the mid and low back than in the neck, and is most common at higher levels of the neck.
http://www.spine-health.com/treatment/injections/radiofrequency-neurotom...

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RFA

Hello Paula,

I don't know if I understood you correctly. As far as I know, NO doctor does 8 RFAs at once; I mean they inject in different levels, but max. 3, so I was told, more is too risky. Well, I quote from my doctor, when I complained about "combing my hair" (like you, sensitivity). He wrote, "In regard to skin hypersensitivity which you ar experiencing (skin)it is related to the FF procedure; there are small sensory nerve fibers innervating upper neck and the back of the head and when I perform RF procedure in the upper part of the cervical spine, sometimes I cnnot spare those, and you might experience this hypersensitivity for a few weeks, but it should eventually go away." He then prescribed Gabapentin and advised Magnesium 0TC with 1000 mg twice per day, take vitamin D3 with it."
Well, eventually, it went away. However, I, personally, would advise, waste of time and pain, since the pains return sooner or later. I gave up and am now with Botox. It helps me 100% at once, but sadly, does not last long either. More, I do not know presently; Botox would help you with your face nerves at once.

Much Luck,
Peggy

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Peggy Yell

haglandc (not verified)
Peggy

There are many doctors and many reasons for performing RFA on more than just 3 nerves or 3 areas. I've had 5 done at once and my niece just had over a dozen.

"C"

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Yes, I did indeed have 8

Yes, I did indeed have 8 RFA's in one day. I have placed 5 calls to his office and have not received one call back. I sit and cry the pain is so intense. There is no way I can go through this much longer. I need to find a new pain doc. I am on Fentanyl and percocett and it is not even touching it. I am very angry that he did not inform me that the pain could be worse afterwards. He did say for two weeks I could be sore, but it is over three weeks and I am so far beyond SORE!!

Thanks so much for your feedback, it is truly appreciated.

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RFA

I too was not warned of the excrutiating pain to follow..I have DDD and osteoporosis and osteoarthritis throughout my spine. I am ready to give up on all of this alleged treatment...Around every corner is another worse ammount of pain...I cried and cried for days...and doctor ( and I use that term lightly) never called back. I am 6 weeks out from ablation and sorry to say hurts worse everyday...I am going crazy , I told my neurosurgeon I wanted to jump off of a bridge if I didnt get some relief. Hang tough...

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Ows1213

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8 RFAs... wow

Dear Paula,

I do not question your honesty that you received 8 RFAs, but my doctor would have never done it. It is really irresponsible from the doctor. My doc asked me if I have more pain above or below (I am German and express myself maybe incorrectly, what I mean is more up or more down (cervical)). He would not do the entire disks. Well, my experience is, that it is not worth the agony, since a RFA does not last much longer than a "normal Steroid injection" or Botox.

Paula, put an ice ring around your neck, use something that calms you down, either holistic or I use some Xanax. I had 2 weeks after pure hell with two levels injections. And the pain will return most certainly. With Botox you get relief the same day. I had no side effects at all, no pains, but sadly, it did not last too long. Don't forget the ice on your neck.

Try it,
Peggy

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Peggy Yell

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Hi Peggy, I have been using

Hi Peggy,

I have been using ice. I have 3 different ice packs so that I can always have a cold one. I don't know much about RFA, what is so irresponsible about the doc doing 8 at once? I am just curious. I really appreciate the feedback I am getting here. It has been 24 days and the pain just keeps getting worse. Thank god I am seeing him tomorrow. I think it is time for a new pain doc! Have a nice evening.

Paula

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RFA stands for Radiofrequency Ablation

Dear Paula,

Every doc has a "different opinion" about everything, that much you will know by now. The drawback for this procedure is that nerves regenerate, so the pain relief - if he shoots it into the correct place - last anyway only a short time. RFA can injure the skin layers, muscles, blood vessels, and nerves. There are no many skilled docs out in what ever procedure you undergo, for example: I "needed 3 eye-lid surgeries" until I looked the way it should have looked after one. Or: I had 2 tummy tucks and n o t h i n g.... Wasted every time $10.000!!! Go to a dentist. With one you "feel" nothing (pain) when he works, with another one, even the shot hurts like hell; Paula, the same is with RFA. I have experienced it and never would go for another one. I really do not know what you can do, if it does not calm down. My sister had a "failed back surgery" wow, she is in brutal pain. Nerves are very hard to fix, I could write a Best-Seller about it. Also, you can be one day better, and wumm, next day back to hell. Can't you not go "in person" to your doc's office who did it, when he does not answer you phone call?

I wish you much luck, but sadly, do not have a good advise.

Peggy

_____________

Peggy Yell

haglandc (not verified)
Correction

Pain relief from RFA can be short term, long term or even permanent. It all depends on the individual and the physiology behind whatever is causing that individual's nerve to send a pain signal. Some people respond very well to RFA, while others do not. Some have the nerves regenerate, others do not.

Please do not feel as if you are doomed to failure because someone else has not had success. I would hesitate to jump from one pain doc just because you aren't having immediate relief or response after one type of treatment. Since you are seeing him tomorrow then query him about the procedure, your current status and what to do in order to remedy it if possible.

I've had a lot of RFA and have had both good and bad results.

"C"

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I agree with C...

I've had four RFAs done, with some corisone injections in certain areas, and have had great results. Generally I have three levels done, bilaterally, but I have also had levels of my C,T and S spine done, bilaterally, with incredible results. The only area that didn't respond that great was my T spine, but most of the pain appeared to be along the spinous process. Relief has been from five weeks to several months, and in some areas, up to a couple of years. I get relief immediately, so I know I am one of the very, very lucky ones.

Tracy

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Any information I provide is through personal experience ONLY....I am not a medical professional, though I could write a book on the impacts of chronic pain and the treatments I've tried!

We must be willing to let go of the life we have planned, so as to have the life that is waiting for us. ~E.M. Forster, Novelist

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Wow!

I am contemplating RFA to T9-10 area after failed discectomy. You ALL have given me food for thought. Most of the discussion has been cervical related. I have pain in all 3 areas of my spine. Thank you for the valuable thoughts and honest replies!

TRACYLYNNE -
You said the only area not responding was the thoracic spine. Did you have rib pain in this area besides the spiny area of your back? So curious about that. I've heard that thoracic responds best to RFA. Thank you for responding to me when you have time.

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Blocks and RFA

I came across this forum a couple weeks ago while researching RFA. I have been battling migraines that have been getting progressively worse since I left the military in '93. It has gotten to the point were I have had some degree of headache everyday for over a year. My neurologists have had me on every preventative and active drug there is out there. Nothing has helped. Finally a chronic pain Dr. sent me down to the little po dunk town of Yankton SD to Dr. Coehen. A week ago tomorrow he gave me blocks to C2 & C5 on the right side to see if I was a canidate for RFA. So far 6 days without a headache for the first time in a year. I only wish that I would have known about this procedure several years ago. I truly believe that it would have saved me alot of missed time at work and to much missed time with my family. The headaches have almost cost me my marriage and my job. I thank God for the skillfull hand of Dr. Coehen and his wonderfull staff. I feel that if there is a certain amount of pain associated with thhhis procedure, it will be worth it. Reading all of the posts here I have weighed all of my options and it sounds like the thing to do. It has to be better than the alternative. I hope that all of you continue to feel relief and continue to recouperate for your situations. I know that already I have almost been reborn to life my life like I had it almost 20 years ago.

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Next step

Well the steroid block lasted a week and a day, and the headaches are back. So next week my Dr. is going to go ahead with the bilateral ablation. Hope to God this works. One week without pain felt too good and I hope that it lasts for a long time. I feel for all of you that have had to endure your pain for long periods of time like myself. Hope that everyone is doing well with your treatment. Worried

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Ask your doctor about

Ask your doctor about amitrytoline..after 35 years of migraines 3-4 per week I am happy to say that I have had a handful of these horrible headaches in 1 1/2 years that I have been on this"wonder" drug..I take one at bedtime
.

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Ows1213