Numbness outside/above right knee

Numbness outside/above right knee

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Anonymous (not verified)
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Numbness outside/above right knee

For those who don't know me (old name "jusserfinn"), L5-S1 TLIF with instrumentation and BMP, Laminectomy, and discectomy all on Jan. 13, 2009. I have had a rough recovery like many of you.

Pre-surgery and up to about a few weeks ago, my comfort was greater when I leaned forward, but that's changed to just the opposite, and I have a lot of pain in my pelvis as well as to the left and RIGHT (pre was only left side) of the center of my spine when I lean forward (add this to when I stand too long, sit too long, etc). When I sit I also get numbess on the outside of my left "cheek", and my numbness in my toes on the left side has returned.

On Saturday, sitting watching my daughters school play, I noticed numbness on the outside of my right knee, just bove the bend. This is something totally new, and since I noticed it, it has not gotten better. I have not gotten a response from the surgeon, (as I didn't expect), so I am reaching out here... I am really hoping this new numbness is NOT connected to my back, but from what I've read, it's highly possible.

My hope is that it could be from inflammation. Anyone experience this kind of numbness?

Thanks,

~Kat

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patwhite101
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Joined: 04/04/2009 - 5:25pm
Hi Kat...

Is the numb feeling just in the skin or does it go deeper?
I had a numb spot just above my right knee. Just my skin felt numb. If I ran ny fingers lightly over the spot I felt the numbness but if I pressed down on the skin I did not.
It turned out to be a pinched nerve. A nerve that gives feeling to the skin. Just the skin was numb for a looooooooong time so I thought nothing of it. Not to long ago that place where I felt the numbness started to burn and sting. It was a burning stabbing pain. Very bad indeed. It got worse when I lay down and I found if I elevated my leg the burning stopped. I am already on a lot of pain meds so my Doctor has did nothing about my pinched nerve and now it no longer burns. The skin is very sensitive when I run my fingers over it but no burning stabbing pain now.
I am having a SCS implant and that will mask the burning if it flares up again.
Best of luck to you,
Sending you a hug coz everyone needs a hug... >:D<
Patsy W

Whyme (not verified)
Title: Member
Patsy

Thanks for your reply! Mine goes deeper, I actually wasn't sure it was really numb (might be in my head), so I poked both sides with a sharp pair of tweezers, and I actually pushed so hard on the right that it now has a bruise! The NS office doesn't seem to be concerned, so I suppose its nothing.

I appreciate the time you took to write, with all your own problems. I hope you are having a mostly pain-free day today! Hug

Numbskull
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Joined: 03/16/2009 - 9:45am
Hi Kat; I have numbness in

Hi Kat;

I have numbness in my leg, which mostly is because of nerves being affected due to scar tissue from a surgery I had on my leg (details in signature). I also have arthritis in my hip, and my ortho and NS said that could be a factor in it as well. Along with minor problems at L5-S1... basically, the outside of my entire leg and foot is numbed and "desensitized" but at the same time is very tender to the slightest touch, if that makes any sense at all. Anyways, as you said, from what you've read, it could very well be possible be nerve related, but I would definitely get it checked out, to make sure that you don't do any damage, if it is a problem with your leg or knee!! Good luck!!!

Kelly
APROUD CANADIANveteranButNOTa doctor, my thoughts are my own

saltzworks
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Joined: 07/05/2008 - 10:32pm
It does make sense Smiley!

It does make sense Smiley! My right leg turned into a wooden block post surgery - but I still felt ticklish on the bottom of my foot! Weird.

Oh, I looked up the dermatomes - above your knee is L3

Could be inflammation, or, ...

My numbness was fast moving (immediately post surgery) and deep. Deep as in I really could not feel anything on the outside half of my right leg down to my everything but my big toe. My big toe was going numb about the time I was taken in for a second surgery.

The numbness stopped progressing but I've not gotten any better in the 11 months since. I have constant hamstring, calf and under-the-foot charley horses when I move those muscles wrong. Extensive PT seems to hold things back from getting worse, but nothing seems to get it better.

Whyme (not verified)
Title: Member
Thanks for the input!

Thanks for the input! Hug

Hopefully, I will know soon what's the cause of this, as I just had a ct/myelo on Wednesday.

I had another problem occur after the myelo on Wed: I had it done starting at 11:00am, went home and to bed around 2:30pm, woke up around 6:00pm, and noticed VERY deep numbness directly over my hip joint (I can pinch the area with no sensation whatsoever). I call the NS on Thurs, they said don't worry for now, if it's still there when I see him next wed, talk to him about it.

Salt, did they find out what caused your numbness? That's such a long time to have it, must be maddening!
What is the link to the dermatomes you used? I can't find a decent one!

I hope all of you are doing well today~! Wave

meydey321
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Hey, I remember you

Hi Whyme Wave I had a TLIF too but it was almost a year ago. I have numbness on the side of my lower leg, heel, and big toe. My surgeon said I have permanent nerve damage so all the pain, numbness, and weakness are here to stay. Have you looked at any dermatome charts to figure which level is causing the numbness you're having? I hope your NS finds out what is causing this and that it's not nothing serious. Take care

Whyme (not verified)
Title: Member
Wow, Meydey to have it

Wow, Meydey to have it permanently is hard to imagine, I hope they are at least able to help your pain! When did they tell you it was permanent? After my surgery, the NS said there was NO permanent nerve damage, so I'm wondering if they could be wrong?

I tried to find a decent dermatome chart, but as far as I can tell, the area of my hip numbness is covered by many different levels. I hope they just hit a nerve with the needle and it will go away soon!

Worried

meydey321
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Hi Kat

Well, I officially heard it from my doctor face to face in February. He said nothing can be done to reverse this and even when I already heard this from another doctor, it was still crushing to hear. I do hope your surgeon is right and there is no permanent damage on yours.