I had shingles in October 2007. The rash appeared on my left chest (near shoulder) and on my head (on left side).
About 6 months after the rash went away, I started to feel tingling, burning, pulling, zaps, jiggly, wiggly, tightness, sharpness, and deep pain in my left scapula that sent spikes up through my neck and nape of head.
I had an MRI that was normal. I saw a neurologist who wanted to do an EMG but I refused since I had already suffered through one of those after a car accident in 1989.
So, my primary care doctor said it had to be from the Shingles. It was post herpatic neuropathy.
I have tried ultram, darvocet, percocet, Cymbalta, ultracet, Lortab, Flexeril, Soma, and Lyrica.
I had 3 sets of trigger point injections that failed.
My primary care said he could not just keep providing me with narcotics and insisted that I see a pain management specialist.
On my first visit, I felt like I was some kind of criminal being interrogated. He had my prescription sheet and grilled me on every prescription I have gotten since 2004.
He bascially explained to me that I could have cervical epidural steroid injections or he could discharge me as a patient. He would not write for any medications. I was floored. I almost cried!
I went for my first cervical epidural steroid injection on March 12th. The Dr. only gave me 2 of Versed and I screamed from the pain the entire time. The effects wore off in 5 days.
At my 2 week follow-up, he scheduled me for a 2nd one and put me on 12.5 fentanyl patch. The pharmacy gave me the Mylan patch. The day after I put the 2nd patch on and did not have any relief, I called the Dr. he suggested I use 2 patches. I get about 40% relief for the 1st day and a half.
I go back to see him on April 13th. I have noticed that
more people prefer the Sandoz patch and plan to ask him to switch me to that at the 25 strength.
I also asked him if he could give me a little more Versed
during the procedure but her refused. My 2nd injection is
scheduled for 4/23.
Anyone else going through the hell that I am??? Please help! Any advice or suggestions would be greatly appreciated.
By the way, I am a single mother of a 12 year old daughter
with Down Syndrome. This ordeal has extremely effected both of our lives terribly.
Thank you in advance - Camille