headache after myelogram!!!!!

headache after myelogram!!!!!

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Anonymous (not verified)
Title: Member
headache after myelogram!!!!!

I had a myelogram on Monday and now I am leaking spinal fluid which is causing the worst headaches I have EVER had in my life. For those of you who don't know, a myelogarm is a test where dye is injected in your spinal cord and then xrays are taken.I was suffering for 3 days with the headache before my doctor would even take the time to call me back. I would have gone to the hospital but I had no one to drive me and no baby sitter. Anyways, now I am on strict bedrest (I can only get up to use the bathroom) and I am on Fiorinal for pain and Cipro so I don't get meningitis. If my headache is not gone by Tuesday I might have to get a bloodpatch. This is just yet one more thing to go wrong in the 3 months since my surgery. I can't take it any more!! I just feel like crying all the time and to make matters worse the wheather has been absolutely goreous here and I have had to miss out on so much lately. Sorry to complain but I really needed to vent.

PRIESTESS
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Last seen: 4 years 3 months ago
Title: Member
Joined: 06/17/2008 - 11:42am
I

am sorry that you have had to suffer so....hopefully this will work itself out and you won't have to go for the blood patch. Don't worry about venting , that is one of the reasons that SH is here. So sweetie , vent away , anytime that you need to. We will be here for you.....please keep us posted as to how you are doing. Take care....Miki

momof7 (not verified)
Title: Member
Been there

I had a spinal headache after mine also. Trouble was, the NS did it over my L4-L5-S1 fusion the first blood patch did not take. They took me back in the next day and pushed some contrast dye in first and then the blood, that one took and immediate relief! Oh I feel for you, I have had many kids, back surgery and pain, plus migraines..nothing compares to this. It was interesting how they want to you to drink alot,but then after you get up to go to the bathroom it takes an hour to recover!

carr28 (not verified)
Title: Member
Its true about the drinking

Its true about the drinking of water. I've been chugging it and then having to go to the bathroom every hour which makes the headache come back and then it takes so long for it to go away. I am feeling so much better now so I don't think I'll need a blood patch. The hole in my spinal cord must be sealed up. I tell you, I never want to get a headache like that again. That is the worst pain I have ever felt in my life. Surgery,drug free child birth, and broken bones are nothing compared to that kind of headache. Thank you for your kind words Miki. They really meant a lot.

Shug60 (not verified)
Title: Member
Nothing but the blood patch

ever helped me with the spinal headaches (I've had 2 too many)......and it is immediate.

I sure hope you get better, but THEY CAN FIX IT FAST.....so don't go through undue suffering. There's NOTIHING ON EARTH like a SPINAL HEADACHE !!

SOOOOOOOO SORRY !

DoxieCity04 (not verified)
Title: Member
I know the feeling about Spinal Headaches too!!!

:jawdrop: I was taken to ER with mine they gave me pain meds which I found out the hard way I was allergic too, but I also had a caffine bag hanging over my bed going into my IV and they gave me something else, but that didn't work. I was screaming at the top of my lungs my head was killing me, they knew I wasn't kidding them. ER doc asked what had happened I told them I had an myleogram done he said he was going to see if the pain meds would work first and sent me home with three shots of pain meds in IV, then two high dosage pain pills and told me if this doesn't get any better come back. Believe me I didn't want to leave. I was the first person waiting back in the ER room with the same nurse saying all that meds we gave you didn't work. DUH sure lock!!!
She again started the IV all over again, I should have kept the last one in. lol The surgery doc came in asked me why did I need a blood patch. He did listen to me and took me back to the floroscopy room and looked said oh my gosh!! :jawdrop: he asked me how long have you been like this?
Well lets see I came in the day before complaining of major headaches and noone would listen to me, and they sent me home which is now the reason I'm here again. I had a huge hole out of my back where they done the myleogram. He rushed me in to have a blood patch done it took two times for me too.
Well it only happens to very small % of people so if your getting one done don't let me scare you sorry, but I would be warned of the spinal headaches they are nothing compared to regular headaches nor mirgrains I have both of them now.

Thanks,
Misty

sunhair (not verified)
Title: Member
I had a myelogram when I was

I had a myelogram when I was hospitalized a few hours after having the myelogram I had started to get really bad spinal headaches they gave me morphine for 3 days as they thought it was just headaches they then did a ct and discovered I was leaking spinal fluid they had to do a blood patch that was not fun @ all.

lulusheart
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Last seen: 1 year 7 months ago
Title: Member
Joined: 06/19/2008 - 5:36pm
Terrible headache!

~X( oh my does that headache hurt! hope you are out of that terrible space by now. good luck and take good care! Jenny Smile

Bratface (not verified)
Title: Member
Life of mine

Holy crap am I happy i found this. I thought i might be the only one with this problem. Had disc replacment on L4-L5, L5-S1 last year July. Have been in terrible pain since then and my NS sent me in for 3 Epidural (blocks) which did nothing except bruise me. Finally the NS decided to do a CT and Myelogram in January. Didn't think things could get worse until the headache started the next day, had to spend two extra days in the hospital with pain. My 'fantastic' NS said that there is no more he can do for me as his discs are fine and my headache is probably just tension. I have now moved to a new NS who actually seems to want to help me. Have had a CT done and am doing MRI on Friday as there seems to be cerebrospinal fluid leaking. Aint that just sweet. Have also now done Facet blocks on both L4-L5-S1 and yes you guessed it, looks like I am going to have to now have a fusion done as they are so damaged the docs are surprised I am walking. Have a two year old boy and a girl arriving in August so at least life isn't that bad. Now that i have vented just wanted to say have a great day and that be grateful for what we have because yes it actually could be worse.
But now that I have vented a bit

Howard5091
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Last seen: 1 year 7 months ago
Title: Member
Joined: 12/05/2012 - 12:21pm
myleograms

Are you supposed to drink caffeine a few days before to lesson the change of a headache, i am told after the procedure its not a good idea why is that so? i am confused . i am scared . does anyone out there care to explain their experience they had with this test. so i know what to expect they are telling me as long as you drink lots of caffeine you wont get the headache.

Mary Howard

Rickilalas
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Last seen: 1 month 1 week ago
Title: Member
Joined: 06/07/2012 - 1:57am
caffeine

Mary
Mylegrams with contrast are not hard to do. I had two last year which were both full spine (cervical thorac and lumbar). The whole process is pretty easy, they do a epidural to get the contrast in and then a tilt table to get the contrast to the areas they need it. It has to flow into the spinal fluid without going into your head.
After both mylegrams they told me to be sure to keep my head above everything else. Head on a pillow while you lay down does this. My next instruction was to start drinking coke or anything with caffine in it. On the first one I did not do that. I got such a bad headache it made me sick. At that point I started drinking tea with caffine and it took many hours before I felt better.

The second time I took a bottle of coke with me and started drinking it on the way home from the hospital. I had another one at home and this time I felt great. I didn't sleep much that night but I did not have a headache or get sick
So I feel it works. I know others have posted that it doesn't work or should make no difference but it sure did for me.
The most interesting part of this for me is that this hospital has a religious background and does not have or sale anything with caffine. On the second trip I asked why and how it makes a difference. They explained that it opens your viens and helps wash the caffine from your system. I did two cokes and then some water and in about six hours I felt fine.

Good Luck
Rick

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