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Hello everyone. My name is Mark and I am from the Philippines. I just joined this site and hope there are some people who share the same condition as me. Advanced apologies for my long post. Pls bear with me.
It started as a simple stiff neck pain Last August 2017. I didn't pay much attention to it and just applied patches on my neck to soothe the pain. Then by September, the pain was so much and I noticed that my head/neck was already leaning to the right. I could not eat well, I have difficulty in swallowing. It is then that I decided to see a doctor. I had my xray done and later that night, the doctor called me and told me to have my neck secured. The doctor explained to me that I was diagnosed with a broken odontoid which resulted to my C2 being dislocated. She said that my spinal cord was already being squeezed by my dislocated C2(is it the right term?) and even a minor fall could make me paralyzed or dead. I wore a soft collar from my sister that night and next morning, we went to the hospital to get admitted. I met with my doctor once again and advised that I have myself put into a halo brace which I am still wearing until now. The pain is gone and I could eat anything again. I just wish I could get out of this brace already.
Now, 7 months into my halo, my C2 has gradually got dislocated again. Doctor said that my neck was so unstable that I need to undergo surgery. The doctors suggested to have my C1 and C2 fused or have it fixated from occiput to C2. The doctor said that C1 C2 fusion may be sufficient but he doesn't guarantee that I will be completely stable afterwards. That's when he suggested the other option: to have my occiput to C2 fused. He said that it is more stable but will greatly if not completely limit my neck movement. What puzzles the doctors is what caused my odontoid to break. I did not get into any accident nor fell from anywhere. Until now, we don;t have any idea what caused it. They want to have a biopsy but they said it is quite difficult since the sample they want to get is from my C2.
Is there anyone who has the same case as mine? How did you got through with it? How is your life post-op? I said that I still need to think about it if I will proceed with the surgery as I know this will forever change my life.
Apologies for the long post as I can't find anyone who share the same case as mine. And thank you in advance for those who will reply.