I was going to post this in the SVS section but it seems as though so many go to this area of the forum and I am desperate for some help. Keep in mind I have read the questioons and answers on the actual SVS forum and perhaps I missed the answers, if so, I apologize but I am looking for information as soon as possible so any input will be of great help. I have an appt with PM dr for a SCS eval on Tuesday the 14th. I am quite sure I am going to have to reschedule as due to some other medical problems, ear infections, eye infections and increased pain levels I have not been able to get prepared for this appt.
I am permanently disabled due to injuries sustain to my neck, shoulder and lumbar areas. I had a level 2 cerv. fusion 3-08 which failed. I had a complete tear of rotator cuff surgery 3-03 which has retorn and lumbar issues at L3,L4, L5 & S2. Only can stand for approx. 1-2 minutes so mostly in recliner or wheelchair. My husband is also disabled due to heard condition. Luckily we both qualified for SSDI within 8 wks from the date we applied. We are now on medicare or rather a Regional PPO Medicare Replacement Plan. It covers more than the standard medicare coverage. However, we are both in the donut hole and will have to pay out of pocket 9000. for meds. This does not include our ins. coverage and co-pays. We lost our home last year due to out of pocket expenses in excess of 20,000. Well I should get to the point. First of all we lived in Michigand and my PM dr referred me to a dr. regarding both SCS and pain pump. Since moving to FL my new PM who is a neurologist has referred me for the same thing. Quite honestly I am not even sure this is something I want to do. I feel as though when the dr.'s have done what they can they automatically refer you for this type of procedures. I am very scared, every single procedure I have ever had I have had complications starting with the C-section I had for the birth of my son in 1981. Ended up with 3 blood transfusions. Rotator cuff surg. developed football size bloodclot and retorn. Cerv. fusion, failed and neurosurgeon had issues which paralysed my rt. vocal cord. So you can understand my fear. Along with the fear I guess my major questions are can I afford to have this done. So here are my major list of questions and I am so sorry for rambling but this is what nerves and being scared can do for me.
1. Trial for SCS is this an out-patient procedure or any overnight stays. We have to pay $250.00 per night.
2. Permanent implant same question as above.
3. Trial for pain pump and permanent placement outpatient or require a hospital stay. We pay $250.00 per night for first 10 days on all hospital stays.
In addition to this we have deductibles to be met and co-pays for each procedure.
I do so want some relief for the pain and I know how important it is to be proactive in ones own care but sometimes it all comes down to the expense. I do plan on calling my insurance company tomorrow to get exact dollar numbers but I know many of you have had these procedures done and could give me a heads up in so far as hospital stays and how well either one or both of these procedures have worked for you. Also, I know the insurance companies are looking to see if you have tried every conservative method prior to going through this. I have only had one set of epidurals. I feel I have a strong threashold for pain but honestly I screamed through the entire procedure. I have tried the tens unit with no success and I own the RS-41 larger stimulator with no success either. Also, as many probably all of us would love not to be on meds our entire lives, I feel my dr.'s will think if I do not go forward with this that I am just looking to stay on oral meds. Believe me if we could afford it I would do anything to get some relief. I have also tried every therapy I think think that is available. Prior to having to leave my job of 30 yrs where I was injured (did not receive Workmans Comp as CEO filed wrong paperwork) my so called dear friend. She told me to do the WC ins yet as soon as I had to get an attorney involved not one person has spoken to me. I was the VP and apparently WC is forbidden.
I am so upset, scared and depressed over all of this. I just don't know where to turn. And again I am so sorry for taking up so much of your time and probably posting on the wrong forum. I did post there a couple days ago but response was very low and I am at my wits end. I could cry my eyes out but have done that and it isn't helping at all.
You have all been so kind to everyone and the few times I have posted your words of inspiration helped me get through the rough patches. Looking forward to any help as I finding my positive outlook is on a downhill spiral.
Thank you so much for listening to me and again sorry for the lenth.