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advice needed please or just some support from someone who understands.

wildgypowwildgypo Posts: 1
edited 06/11/2012 - 8:48 AM in Spinal Stenosis
i am new to the forum, and would just like some advice, i am 43 years old and have degenerative disc disease, spinal stenosis and facet joint disease, i was diagnosed ten years ago after a spinal fusion and two discemtomys and a de compression. i have had chronic pain, mainly lower back and in my legs, but over the last six months the symptons have become more unbearable, i was admitted to hospital about three months ago, my surgeon decided to do a decompression as an emergency procedure and to lengthen the rods in my spine after a myleogram. but then did a complete 360 the next day, and i was sent home on pain meds, mst, gabapentin and diazapam.
Over the past week, the pain has gone off the scale, and i am experiencing numbness in my feet and weirdly my fingers, i am also having bladder problems ie spasms and frequency, also bowel probs with extreme pain in my spine and legs when i try to open my bowels.
I am feeling really down and isolated and am not sure if this is just a progression of my illness or something that needs to be assessed by a doctor.
i would appreciate any advice or just some support. thanks for taking the time to read this


  • Fiona,

    Welcome to Spine Health >:D<
    Please get to a doctor soon. Anytime you have off the charts pain it is a red flag that something is wrong in your body. Combine that with numbness in your legs and the other issues and I think you could have something going on. I would even go to the ER (I have good insurance). In the very least call your NS/OS who did your last procedure and give the nurse the details. Better safe than sorry.

    I think you need to see them right away.

    Good luck,

  • Love that name by the way!!! Julie is spot on. If you are in that much pain, you need to let your surgeon know. He may tell you to go to the ER, or hopefully better yet, get you into HIS office to see what is going on. So sorry to hear you're hurting so bad. Support *HUGZ* Please let us know how it goes.

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
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  • Welcome to Spine Health.
    I have to agree with Julie and Brenda. You need to see your Doctor as soon as you can.
    Something is not right expecially with your bowels and bladder acting up like that.
    The numbness in your feet could be a problem at L4%L5 and the numbness in your fingers sounds like the cervical spine.
    Best to you and please keep us updated. We do want to know.
    Cheers :H
    Patsy W
  • I have to agree with the other three.
    The problems and pain that you are having should be investigated as soon as possible, or your surgeon at least, informed. The bladder and bowel problems that you are having are a red flag issue and you need to get medical advice.

    Numbness in your fingers does sound like cervical problems. Your feet issues could also come from your neck.

    I am awaiting results from an MRI scan, which has been done because of neck, arm and hand pains, tingling and numbness. I am also having neurological symptoms in my legs and feet, and have been told that this could also come from my neck. (I have had a lumbar fusion of L4/L5 earlier this year.)

    I hope that you get to see someone very soon and that they will have a plan to help you.
    Please do let us know how things turn out.

    Welcome to Spine Health!
    Here you will meet a large gang of friends, who will be able to support you through this. People who understand because they are going through similar problems.
    There are also various articles on different spine problems and treatments.

    Welcome! :H
  • ..your pain has escalated so badly. As everyone else has said, there are definitely some symptoms that are pretty serious, especially the bowel and bladder issues. Have you ever been diagnosed with cauda equina?

    As for foot pain, that is a common symptom of spinal stenosis; since you posted under this title, I'm assuming you have that with the DDD?

    It sounds like you've been through a lot over the past few years; it's definitely time to see your specialist again, or at least your family doctor. It would be terrible to see your pain progress any further.

    Take care and keep us posted. If the pain really becomes too much to bear, you might want to consider going to the Emergency Room at your local hospital.

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