Hi. Over the years I have read so many posts but never written one. My heart bleeds for everyone that's cursed with this under treated, dibilatating condition.
I had a mild case of sciatica starting in 2005. I had gotten in a hit and run and being young and stupid, trusted my doctor and believed that the surgery he was going to do would heal my pain. I didn't know real pain back then it was only discomfort. I was butchered bad. Later learned the surgery done was a last resort type and it never should have been done. A year after my failed surgery I started getting horrid painful back spasms then the most dreadful pain in my left buttock groin, thigh, I went to over 20 Drs to hear it was in my head or they didnt see anything wrong with my cage from my surgery. Nothing about sciatica.
I couldn't get out of bed by myself, eat, all I did was scream and cry until I passed out from my Xanax. Long story short I wound up in the hospital because I figured out my Topomax if taken much more than prescribed stopped the pain. I was not trying to off myself if I was I had much harder drugs at home. I was on the cardio ward suffering for 10 days and not 1 Dr touched me, I begged for a shot I told them my sciatica was killing me only to be ignored. At this point it was in my foot, the pain unbearable!!! After being released on high dosages of narcotics I went to see a top pain Dr that heard about me and made an exception and took me on as a new patient. Within 5 minutes he told me and my mom I had the worse case of sciatica he had ever seen and scheduled me for a shot.
I thought yea finally!!! Shots didn't take. My Dr was scared for me, I was a mess, I had lost 50 pounds now, was too weak to scream, it was bad so he admitted me into hospital to get fluids in me. Out of nowhere this Nuerologist comes in my room and tells my husband and I that he has me down for emergency surgery in the morning. He saw an old scan in my file and the hardware was full of defects and he wanted to see what other damage was done. I was elated and furious.
My sciatic nerve that whole time was in between my L4&L5 squished!!! Plus all the other damage.
So here it is 3 years later and I'm still in bed suffering just reduced by 50% , overweight from all the nerve meds and lack of activity, I live on ice and heat 24/7, I'd rather be paralyzed which was my biggest fear growing up, my butt pain is intolerable, If In between shots my Dr experimented on & it worked thankfully I only get relief if I dig something sharp in my foot. This is no quality of life. This is inhumaine. There is not enough research on Sciatic nerve damage.
I've lost 3 people to Cancer since this started and they all agreed they didn't suffer like me yet the care and medical/medicinal treatment they recieved was apples to oranges.
How much suffering is enough? There is no cure, meds don't work. If I was an animal I'd be put out of this misery humainly. I'm robbing my husband of a life, my son can't stand to see me in pain. I should be in control of my pain not Drs who don't have a clue what this feels like. I miss life but I lived a good one. I nor most anyone deserves this, what does 1 do when their sick of suffering ?