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advocate for chronic pain



  • charlie6017charlie6017 Posts: 412
    edited 05/17/2013 - 2:25 PM
    Hi Janelle,

    I can certainly understand and respect your position! :-)

  • For what it's worth, those of us that have been around awhile and have watched NASCAR racing for years, a former driver, Dick Trickle committed suicide yesterday at the age of 71. As it turns out, he was in severe chronic pain and in the story on ESPN's website, he was working toward getting an implanted device.

    The article never specified whether it was related to the spine (It's ESPN, no surprise), but he had apparently had many CT scans and MRI scans.

    Just related news to chronic pain and the toll it takes. :-(
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  • I will research people in Australia who have chronic pain and high profiles.

    That is such a great idea - people are so influenced by the media. JFK had chronic back problems and overmedicated because of them.

    There was a great doco about famous people and the drugs they took, mainly for pain. Will try to find out the name of it. Was interesting as a lot of them had back injuries - pity they are dead now.
  • This is a great idea!!

  • charlie6017charlie6017 Posts: 412
    edited 05/17/2013 - 3:04 PM
    Hi Aaron, I can imagine the list would be huge and the names probably would surprise some. I would be interested to see such a list. Given that chronic pain is taboo as you mentioned, in my opinion it can qualify as a different type of "silent killer".

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  • How about Paula Abdul? When she had her reality show she was very open about meds and pain mgt.

    Also John F Kennedy dealt with severe chronic back pain. He got steroid inj.s regularly.

    I think for the most part us sufferers have no energy for advocating : z

    Sorta like the potsmokers having a rally and no one showed up. They got high and forgot it was today! : /
  • fyi
    i have not heard from warriors yet. but i think if we are serious and not just talking, a letter with signatures sent to a congressman or senator a ranking one might help. if we hear from warriors then maybe they will help. it might be hard to get all of spinal health to sign a letter so hoping groups like warriors is the best option unless someone else has as idea. you know to be helpful, it needs to be read publically or on the senate floor or at a hearing. but i think that might be wishful thinking. so how to get someone or a famous group to read a declaration on the senate floor or on national tv. it seems to be a tall order.
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • Thanks very much for the update and taking the time to contact Warriors. I definitely appreciate it! :-)

  • What if more than one us contacted Warriors? Like as many of us are willing to? No pressure on anyone here but if they want to do so....do you think that my get the Warriors attention?

  • Kiki48KKiki48 Posts: 196
    edited 05/18/2013 - 1:29 PM
    I meant to write "might" instead of "my" drives me crazy how much I'm doing that lately lol.. Oh well, :-)
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