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5 months post opp L-1 to L-5 fusion-Pain is too much....



  • I really don't think that (most) people want to, sometimes in life we need a little help to get back on our feet & that's what these services are there for. I think 'But there for the grace of god go I..' (that's just a saying not a religious thing)

    Because of my health I couldn't do food bank so my husband went. Obviously I've told him what it's like helping people but he's still shocked by the reality of it. We are so comfortable in our lives! It's now 1 in 6 people who qualify for help. They aren't looking for an easy life or handouts. In so many cases it just circumstance & I find myself worrying how many are put there in the USA by medical bills. We're just so spoilt in England.
    Osteoarthritis & DDD.
  • I love this site for so many reasons, mostly it's the people I've met. This isn't a place for just new pain sufferers to pop in & ask a question, it's a community, a family & we all bring very different life perspectives & spine experience. I appreciate ALL sides of the story & don't want everything masked through rose tinted glasses. I know it must be very hard to monitor that balance sometimes but we're all doing ok, aren't we?
    Osteoarthritis & DDD.
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  • Lmr106LLmr106 Posts: 119
    edited 05/29/2014 - 9:30 AM

    I would really like to retrain for a new job, but I haven't been able to find services. Do you know where I could possibly get started on this? Thanks. So far I have looked on my states government website and also the county website where I live.
    Just Duckie, I am so sorry to hear what you're going through. I wish I had a solution for you. The only thing I can think of is for you to talk with your most recent doctor, the one that is prescribing the Oxy, and see what their recommendation is for your new situation. I hope things get better for you soon.
    2000- spinal fusion, complete spine due to scoliosis
    2012- pain began, started treatment for chronic pain
    2013- install of pain pump, procedures to address complications
    2014-blood patch, spinal fluid leak
  • First, Tony, I think you are still handsome! I don't care what anyone says! And you aren't alone in your corner, not as long as I am around.

    Now, Just Duckie, if you can't afford your meds, most pharmaceutical companies have a program for people who can't afford their meds. Just look them up on the internet, call their customer service line, and they will most likely help you from there.

    As Sandi and Tony both have said, you ARE early in your recovery. You will probably always be in some pain. But it is too soon to tell. I was in bed for 4 motnhs after mine, and still in excructiating pain at 8 months. But from there it got lots better, and today I am considered a success story. On the other hand, there are those who don't fare as well. Try to stay positive, follow Dr's orders, and give it time.
  • Terror, I am shocked to see such narrow mindedness in a grown individual.
    I injured my back AT WORK, 10 years ago. In the USA, this falls under WC (workers comp). No matter what I wanted to do about it, which was to get back to work asap, I was forced to follow WC protocol. I was making over 100k a year, 4 children (ages then were 14, 13, 11, & 10). I went from my salary to my wc cap, which was a joke compared to my income. I went through 80k in savings, lost my house, spent my kids college money, lost my best years of my life, lost my health. And soon, my life.
    I have had multiple surgeries, all failed. WC runs out after 2 years and then you get nothing from no one, unless you apply for SSI.
    After my last major sugery, 4 yrs ago, I immediately knew something was wrong. It would take me 10-15 horribly painful hours to have a bowel movement. I instantly reported this to my surgeon as possible CES to which he didn't believe and said it was opiate related. They did the special cats with the dye etc etc and found no CES. I was then sent to a specialist for anal problems, and this guy said I was making it up in my head, psychosomatic. When my reg doc got the report, I was shocked to hear this "specialist" that did a colonoscopy as well as other tests decided that I was manifesting problems. When WC approved more tests with the same specialist, I was happy, because he would do these more detailed tests i.e. anal monomatry, nerv conduction, etc...and he would see that there really is a problem and help me. HA!!! I was wrong. I was crying and begging him for help and his response was "you haven't received mental counseling yet?" I couldnt believe what he said to me and....well....they hadto escort me out out of fear that I would hurt him.

    Fast forward 3 yrs to around 6 months ago....which, now, WC denies every request for any procedure.....I was now labeled a nut job "trying to milk the system"....ya, I pretended to have bowel incontinence and severe pain only to have doctors stick everything under the sun in my butt while I "MILK" our govmnt out of 12k a year to get ssi, throwing away a 6 figure income. Sounds about normal. NOT. So, I'm figuring, I'm gonna die on the toilet like Elvis, because the doctors think im nuts....I have a stroke from the straining in agony on the toilet. It was then that my other insurance (medicare) doctors, totally unrelated to wc, decided something has to be wrong because I am only 48, in great shape (not fat), don't smoke etc. A doctor comes in, that was not even a specialist in proctology, asked me what was going on....I told him, he gave me a rectal exam and immediately new what was wrong. He sent me to another surgeon that gaveme botox in my butt which was a miracle for 6 days and then didnt work after that. Why couldn't the wc doc, who is a specialist, do that? Because of the wc system. It turns out that I was right all along and have CES, but it has been 4 yrs since onset of TIT (terror in toilet), so I knew that I was in trouble. I have had 2 stimulators installed, hoping to help the stroke causing bowel problems, but sadly no luck. Now my life is in danger, I wear diapers and spend most days screaming in the toilet all because they didn't listen to me in the beginning when this all could have possibly been avoided.
    The wc system failed me because some arrogant doctor failed to abide by the hypocratic oath, that all doctors pledge to uphold, because he felt I was faking it. I have paid with my life due to a failure in our work comp system, not because I didn't want to work just so I could lose my home and everything I owned to suck the measly 12k or 15k a year from ssi!!!!! Who would chose to do such a thing? In your eyes, apparently, a lot, or most people just aren't as tough as you are, going to work while you are still in pain. I commend you for that, I did the same.
    Either I went back to work or starve...now I am unable to leave home to go to work, I barely can make it to doc appts., I wear diapers and my condition is only worsening. I don't think anyone who is gamefully employed would choose to go through our government system. I think you may be mixing up your government assitance stereotypical thoughts with gov aide, wic, food stamps, unemployment, or whatever else.....they are different depts. Take it easy on the "majority" of patients on here, cause most of us are stuck in this horrible work comp system from our government.
    my 2 cents...now I have no cents. LoL sorry, I made a long story longer.
    p.s. to give you an idea of the pain I go through daily....I passed a kidney stone(if you have heard, they are extremely painful) about a year ago whilst on the toilet, and it was no different from what I go through everyday. So everyday, for me is like passing kidney stones while I have a bowel movement. I am amazed I have lived this long.
    In conclusion....Avoid surgery at all costs, if you must go under the knife-stay positive, if you are spiraling out of control-as I am, NEVER-EVER give up, never give in, always try for a better tomorrow, and be good to each other, we are all suffering in here (spine-health).
    Slainte' Michael
    never ever give up!
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